changeling times

trials and tribulations of eclectic chicken

Last Intrathecal chemo… February 25, 2013

Filed under: cancer — eclectic chicken @ 10:04 pm
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In time i shall look back with fondness on my IT chemo….

Actually no i won’t… its a horrible horrible thing and I’m SO glad today was number 4 and the last one. Even if they change my chemo I won’t have more. It’s very much a belt and braces approach to chemotherapy and by god I hope its worth it.

I hadn’t realised how much I’ve been dreading it until I was on the bed with my palms sweating and the thought of outright refusal running through my head.

We had a student nurse in to observe and I doubt i taught her any ‘new’ swear words… but I think she probably got the gist that its not a nice experience.

Having had bad reactions post lumbar puncture I take it very easy on the lyng flat and regaining the vertical at some point…. I went in at 1pm.. had the procedure about half past and left the unit at about ten to six.

Most of the afernoon was therefore me on a saline drip staring at the ceiling…except the bit where I caught myself snoring.

I think I made things worse for myself by bemoaning the fact that hospital beds no longer come with radios in the wall behind to listen to…. so the lovely nurse brought me the ward radio (it was a quiet afternoon and no-one else seemed bothered) but then all we seemed able to tune into was Kiss FM…. and nearly four hours of a ceiling and Kiss FM is ALMOST as bad as having a needle stuck in your spine…. or eyeballs even.

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Another intrathecal chemo hits the dust February 5, 2013

Filed under: cancer,home stuff — eclectic chicken @ 6:52 pm
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IT chemo number 3 done and dusted…. counting can be so satisfying.

It didn’t help that I turned up for a 12.30 pm appointment and there had been a glitch with the intrathecal chemo drugs – the technical term seemed to be ‘didn’t like the look of them’ – so Meg and I had a leisurely lunch and a wander round the vastness that is Peterbrough City Hospital… and annoying building that one always thinks is based on a series of squares that by rights you could go round all day in an MRSA threatening ambulatory version of the Circle line… but sooner or later you always seem to find a door that needs a swipe card, and diving through when someone else swipes just isn’t approved of.

By rights I shouldn’t have been up for hospital wandering…. but this cycles chipperiness is still upon me…so what the heck.

Thence to the sticking the needle in my spine… never pleasant… but needs must and all that….the a couple of hours or three on a saline drip attempting to keep that blasted post lumbar headache at bay and having another bash at sussing the crochet… my entire afternoons learning had disappeared and yesterday I must have attempted the same two lines of crochet twenty or thirty times… the end foot of wool looks like something Willam Brown would be, if not proud of, in the ownership of.

I was last person left on the day unit when the kids came back to pick me up and for some bizarre reason (oh yes… he’d missed out last greasefest) I’d promised the boy a Kentucky fried Chicken supper…..

He claims not to remember eating KFC before apart from when he was tiny, driving back from Brum in a truck and he claims only to have eaten the chips…. he wasn’t very impressed this time. Not least with the fact that they only sell chicken! well duh!!!

He also decided they should have an advertising campaign along the lines of “our food is rubbish but we do some cracking deals”…. hopefully this will be applied in his mind to the wider issues of consumerist society the same as the his older sisters lightbulb moment at deciding that ‘Barbie’ chocolate tasted really shite.

Thanks to a winning combination of steroids (part of the chemo) and best part of a big bottle of full fat coca cola (another labelled product that tases like shit – but keeps that headache threat at bay) I only got about four hours sleep last night.

So today is the day after my IT chemo and yes I feel wobbly…. a couple of times wobbly enough so that going from bed to toilet (about 12 feet away) made me glad of the sit down.

But I went out…. Meg and I had Key Lime Pie at the bikers cafe and a suasage roll from the butchers… and Meg bought the ingredients for a chocolate orange gluten free cake for me that she’s making cos she luuuurves me (and I demanded it).

Chipper.. definitely chipper.

Oh…and the whole crochet thing has come back to me and the test piece I’m making is serendipitously just the right size to make into a mobile phone cover – so I can take the plastic screen cover off at last. 🙂

 

catching up January 9, 2013

Someone sent me a note of slight concern today as I’ve not been blogging… they were worried about me being bogged down by my chemo.

Actually its quite the contrary… the last few days (maybe as much as a week – lucky me)! I’ve felt pretty much normal… the urge to try and fit three weeks worth of life into a weeks worth of having muchos energy has been almost over-whelming.

But no…. I know to try and conserve my energy… as I start to run up stairs I say ‘no -walk!’ to myself…. and remember to eat proper regular meals – we don’t want all those additional calories to go to waste before they are really needed, do we?

Feeling chipper has made me realise just how little I’ve been out of the house (other than for hospital appointments). So highlights of the week have included a visit from ‘he who shall not be named’ bringing Christmas presents, bonhomie and a trip out to a local pub for a sandwich. (and a slice of white chocolate and raspberry cheesecake).

An overnight stop at Annies for veggie sausage, chips, fried egg, cheesecake (can you see a theme here?) and a game of charades and general larks. Can’t remember when I last laughed so much… the boy at supper time asked who was the prettiest person at the table (bear in mind three gorgeous teenage girls were present)…so I put my hand up and said I was and with perfect comic timing he quipped – “not you baldy!”

And then yesterday Meg and I went and brunched at our local bikers caff (or ranch house as they prefer to be called) and stuffed ourselves with a build your own breakfast, mug of tea and a piece of excellent key lime pie (wot no cheesecake!?!) each…. I felt totally food satisfied and even braved baked beans!

…and then today… back in for my third chemo session (hopefully that puts me at a hypothetical half way mark)… I can feel the poison creeping round my body already (no morphine to numb or distract this time). When I got home I took the dog for a short walk…. it could be my last walk in the fresh air for a week (though i have the treat of IT chemo tomorrow back at the hospital).

deep breath…and round we go.

Feels horrid… feeling so healthy and then having to go down into the cycle again.

 

 
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